Journal of Disability and Oral Health
- Cover Date:
- August 2006
- Print ISSN:
- 1470-8558
- Electronic ISSN:
- 1754-2758
- Vol:
- 7
- Issue:
- 2
Oral Presentations
O1A:1 The Berlin Denal Health Behaviour Programme group prophylaxis for children and teenagers with disabilities O1A:3 Gingival hyperplasia associated with hyaline fibromatosis a report of two cases
R. Grahlen, LAG Berlin, Germany. info@lag-berlin.de Objectives: Dental health promotion means integration of oral health into daily life. Oral self care can create a tremendous increase in the quality of life. Our health education programme for children and teenagers with disabilities tries to make this understood. Our goals for them in (dental) health are: participation, equity and self determination instead of passive welfare, pity and paternalism. Methods: Our 75 dental nurses perform group prophylaxis for 300,000 kids up to 4 times a year. Amongst them are those with disabilities in kindergardens, regular and special schools. Peoples needs guide our system of resource-distribution: those who need more, get more! This goes especially for kids with disabilities. Based on salutogenesis our health behaviour lessons promote their dental empowerment. Our educational methods are based on partnership including all the senses. Multipliers get advisory help. Results: An assessm e n t of the extent to which health promotion actions achieve a valued outcome needs longer periods of time than evaluations in other parts of health promotion. Nevertheless we can report a significant rise of caries free teeth amongst children with disabilities over the past 5 years. In health education we cannot meet RCT-standards (randomisedcontrol-trial). It is evidence-grade V we stick to: assessment of experts, associative observations, descriptive presentations and subjective satisfaction. Our outcome is high. The schools give us access and all involved; children, teachers and educators highly value our work. All of them give us positive feed back for our behavioural approach. Of course dental treatment and fluoridation, which we encourage, play an important part as well. Conclusions: Kids with disabilities need our special care. This can be performed equitably, meeting their demands. The emotional approach is the key to behaviour forming. It is also the professionals who need more motivation, new ideas and encouragement. Want to see how it works? Join the next presentation! H. Fadel, M. Al-Malik, King Fahd Armed Forces Hospital, Saudi Arabia. drhfadel@yahoo.com Objectives: Hyaline fibromatosis is a rare autosomal recessive disorder affecting the connective tissue, characterised by an accumulation of hyaline in the skin and other organs. The condition is characterised by: multiple cutaneous lesions (papules, nodules, tumours) mainly on the scalp, face and neck, progressive joint contractures, osteolytic lesions and gingival hypertrophy. Methods: This presentation reports the oral findings of two cases of Hyaline fibromatosis patients referred to our dental clinic at the Military Hospital in Jeddah due to extensive overgrowth of gingival tissue in the oral cavity that affected their feeding habits and breathing functions. One patient was diagnosed as suffering from infantile systemic hyalinosis, while the other was diagnosed as having juvenile hyaline fibromatosis. Results: Both patients showed similar clinical and histopathological findings, but one patient showed a more severe form of the disease. Therefore it is difficult not to consider them as part of the same disorder. Conclusions: Children with hyaline fibromatosis have special dental needs, thus it is important to start early caries preventive measures and dental treatment. No known therapy exists, and the only treatment is surgical excision of the lesions, with an aim of improving aesthetics, function and quality of life.
- Article Price
- £15.00
- Institution Article Price
- £15.00
- Page Start
- 80
- Page End
- 95
- Authors
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